Karlie's Story

My story began when I entered the 8th grade at just 13. That year, my parents noticed my seating positions were uncommon, my posture starting to decline in ways that felt unsettling. I could sense something was wrong with my spine, but I was too young to fully understand or to advocate for myself.
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Then came the diagnosis: scoliosis, kyphosis, a fractured L4 and L5, and spondylolisthesis. I find myself among a rare group, severe spinal issues, but not severe enough for surgery. It’s a frustrating reality that often goes unspoken. This diagnosis has been life-altering, shaping my identity in ways I never expected. I’ve often felt a mix of emotions about my condition, including a sense of isolation and the struggle to find the right support. If I could go back, I do wish that I had full access to my medical records and more options/support for my diagnosis. Because I was so young, most of it was explained in ways I couldn't understand. As I have become older, I have had the opportunity to explore options for myself but I had to go through the entire process over again trying to explain my condition and advocate for the pain and uncomfortability I face every day. My current doctors have noted that it would have been beneficial for me to show them past records that I was not able to access.
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Fast forward to the present day, I discovered yoga, and it has become a lifeline for managing my daily pain and negative thoughts surrounding my scoliosis and kyphosis. Still, I often wish for more options, more hope for both my physical and cosmetic concerns.
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I am honored to be a leading perspective for Enuval. At first, it was tough; learning to accept my condition was a journey in itself. But now, I feel stronger and more confident. I want to share my story for others who are facing similar challenges. Together, we can shine a light on scoliosis and spinal conditions, tackling these medical hurdles head-on both in the states and internationally.
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Thank you for reading my story and know you are never alone.